Wednesday, October 15, 2014

Really?!?!?! And we are on the list!

Things have been pretty quite here on the home front,, in regards to Todd's health anyway.  He is still on dialysis every night, for 9 hours he is tied to a machine.  He still has all the side effects from his meds, which make him sicker than anything,, every single day.  It's just part of our daily routine at this point,, get up, throw up, shower, brush teeth, get dressed,,, etc, etc. 

We have been super busy with moving to West Jordan.  We needed, (I needed?) to be closer to family, for one thing for support,, for another, so I didn't have to miss work for all these dr's appointments Todd has.  We are in a cute 4 bdrm home that we love love love!!! Our 11 yr old especially likes having his very own space in the basement!  I've been told he's preparing it to be the man cave for when his oldest brother gets back from his LDS mission in Macon Georgia in 14 months. 

Being in West Jordan also means we are a lot closer to the transplant center.  Like 5 1/2 hours closer!! Huge benefit for when a kidney becomes available! 

We got a call from Barb at the TC (transplant center), yesterday saying Todd needed to get down there asap to have his blood drawn for cross match testing.  She doesn't want us to miss out on a kidney should one become available.  *stay with me here,, this is where it gets confusing*,, Todd's blood type is AB+, the TC has a scale on which people are numbered for match quality,, *yep I'm confused too at this point*  it goes from 0 - 100, 0 being the BEST quality for a match, and 100 being the worst.  Meaning if you are a 0 you have a fantastic probability of finding a match for a kidney,, 100, your chances are minimal at best.  Todd is a 0! So being AB+ and a 0, he can accept ANY kidney out there... ANY!  So he is on the list waiting for a match.  No Idea where he is on that list,, he could be number 30,, he could be number 500,, we haven't been told yet....

HOWEVER, and here is the exciting part,,, if the TC gets a AB+ donor, that kidney can only go to an AB+ recipient. Enter the rush to get his blood panel done.  He gets to move rapidly up the list, like to the top if an AB+ donor becomes available.  Apparently its a rare blood type.  *No clue*

So,, YAYAYAYAYAYYAYAYA! Now we wait!  In the mean time, we have decided to raffle off our/MY VW beetle to fund raise for expenses.  Although they have dropped considerably since we moved up here, they are still high, and being as I am the only one working our income is limited.  IF any of you are interested in buying a ticket for the beetle, you can text me or my hubby at 702-816-1388.  Thank you again for all your prayers, love, donations, and all!  Wouldn't be able to do this without it!! 

Love and healthy wishes

Rhonda


1 comment:

  1. Prayers and crossed fingers for the fabulous Johnsons! - Jen

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